This application is designed for families like yours.
You are not alone in raising a child with Angelman syndrome, and your experience can be valuable to other caregivers.
AS Connect is an application designed to connect people who have a child affected by Angelman syndrome in order to:
- affirm that my child exists and is part of a global community affected by this genetic condition;
- encourage exchanges between caregivers around the world and help reduce feelings of isolation;
- extract statistical insights about the community, such as the number of people affected by Angelman syndrome, distribution by genotype, age distribution, and prevalence by country.
Who is it for?
It is intended exclusively for caregivers of children affected by Angelman syndrome and is based on the explicit collection of the caregiver’s consent regarding the purposes described above.
Signing up takes just 5 minutes, and then you can freely connect with other caregivers and share the challenges your children face