The application is based on cities and countries to display caregivers on the map.
Geolocation is also used to enable filtering based on the distance from your current location.
The application is accessible on a computer, tablet, and smartphone.
Simply open a web browser and access the web application page.
You just need to go to the menu, select Edit Profile, update your child’s information, and then confirm your profile.
The photo serves as your child’s presentation within the application.
All photos are compressed and encrypted.
Accepted formats are JPEG, JPG, PNG, HEIC, and HEIF.
Yes, the application is available in French, English, Spanish, Portuguese, German, and Polish.
If you are interested in having it translated into another language, please send an email to contact@angelmananalytics.org
The analytics report is accessible to everyone.
To comply with data protection regulations, the data is pseudonymized. In addition, individuals are not displayed when the number of people in a category is below a minimum threshold of five.
However, you are still included in the overall indicators, such as the total number of people living with Angelman syndrome.
All data is encrypted during storage and transmission. Passwords are hashed in accordance with security best practices, and all communications with the service take place over HTTPS.
Yes, the application is based on the caregiver’s informed and explicit consent.
The data is hosted in Europe. Users can exercise their right to be forgotten at any time by going to Menu / Privacy Policy / Right to be Forgotten.
All data is end-to-end encrypted.
If you have any questions, you can contact the administrator via Menu / Contact Us.
Yes, future developments will depend on how users engage with the application.
A group has been created so that you can share feedback and suggest features you would like to see in a future version.